Research
IKNL distinguishes the following research domains. The Netherlands Cancer Registry offers many opportunities for clinical and epidemiological research. In addition, together with Tilburg University, IKNL established the PROFILES registry (Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship), that combines population-based cancer registry data with patient-reported outcomes. Patients can be monitored, also after treatment has ended, based on information they provide through questionnaires, leading to valuable insights into the long term consequences of cancer.
Please read more about our research:
Cancer screening monitor
From 2015 until 2021, IKNL monitored the performance of the three national cancer screening programmes, breast cancer, cervical cancer and colorectal cancer, on behalf of the National Institute for Public Health and the Environment (RIVM). Every year in that period, IKNL provided reports containing the most important outcomes of the population screening compared to previous years. These reports include performance on participation, the number of referrals and the number of deviations found. All reports, including those compiled by IKNL, are available at the RIVM website.