Netherlands comprehensive cancer organisation (IKNL) is the quality institute for oncological and palliative research and practice. IKNL collaborates with healthcare professionals and managers and patients on the continuous improvement of oncological and palliative care. With data from the Netherlands Cancer Registry (NCR), we enable health care professionals, policy makers and others to reflect on cancer care and prevention.
Improved technologies and medicines are leading to new treatments in oncological and palliative care. This demands further specialisation on the part of professionals and sets higher requirements for their collaboration. At the same time, there is a growing demand for transparency regarding the effectiveness and efficiency of treatments, such as the responsible use of new medicines.
As the knowledge and quality institute for oncological and palliative care, IKNL responds to these changes. We collaborate on continuously improving the quality of oncological and palliative care. IKNL assists in policy-making and the development of creating networks such as the Comprehensive Cancer Networks (CCNs) and consortia for palliative care.
Data from the NCR currently are used in over 200 publications per year in peer reviewed medical journals and have a proven impact on cancer. For example, quality improvement based on insights from the NCR resulted in decreased postoperative hospital mortality rates, being most outspoken for patients with pancreatic cancer: from 24 to 4%. The NCR is also used as a primary source for evaluating effectiveness of treatment. Prediction models based on NCR data help individual patients and care professionals in shared decision making. IKNL participates and delivers facts and figures from the NCR for the public website kanker.nl that is consulted 80.000 times per month.