News

In the Dutch session at HIMSS2021 dr. Xander Verbeek, head Research & Development at the Netherlands Comprehensive Cancer Organization was invited to share his vision on data analytics in oncology. He emphasized the role of the cancer registrations as fuel and engine for data driven rapid health systems, with the overall aim to learn from patients and improve health care. What is his vision for the future of data and AI to improve quality of cancer care?

IKNL joins PIONEER, the European Network of Excellence for Big Data in Prostate Cancer. Within this consortium research will be strengthened with data from the Netherlands Cancer Registry (NCR). A Data Sharing Agreements was signed for this purpose. IKNL will share results of analyses and aggregated data with Pioneer partners, thus protecting the patients' privacy.

115.000 patients* were diagnosed with cancer in 2020, a decrease of 4.000 diagnoses compared to 2019. This decrease is caused by the postponement of doctor’s visits, the temporary halt of screening programs, and the downscaling of healthcare services last spring due to the COVID-19 crisis. The decrease in cancer diagnoses is the first decline since the establishment of the Netherlands Cancer Registry (NCR) in 1989. The decline in cancer diagnoses was observed across all cancer sites; however, it was most pronounced for breast, colo, and prostate cancer. These findings derive from data from the NCR and are presented by the Netherlands Comprehensive Cancer Organisation (IKNL) at the occasion of the annual World Cancer Day on February 4, 2021.

Fewer breast and colorectal cancer diagnoses have been made in the Netherlands due to the COVID-19 crisis this spring. The decline in the number of diagnoses was more abundant in age groups invited to national population screening programmes, as compared to other age groups. More specifically, there was a drop of approximately one-third in breast cancer diagnoses (including its precursor) among 50-74-year-old women and approximately one-fifth in colorectal cancer diagnoses among 55-75-year-old men and women. These are the age groups that are invited to national population screening programmes in the Netherlands. Avinash Dinmohamed, Sabine Siesling, and coauthors described these findings in the Journal of Hematology & Oncology based on data from the Netherlands Cancer Registry (NCR) that relies on pathological cancer notifications via the Nationwide Histopathology and Cytopathology Data Network and Archive (PALGA).

Survival for five of the most common childhood cancers in the Netherlands has improved over the past decennia. This is the conclusion of the thesis of Ardine Reedijk entitled 'Progress Against Childhood and young adolescent cancer in the Netherlands since 1990'. This research concerns an epidemiological descriptive study on the extent of progress in the care of children and young adolescents (0-17 years) with cancer since 1990. The study is based on data from the Netherlands Cancer Registry combined with the data from the registry of the Dutch Childhood Oncology Group (SKION).

Patient organisations, healthcare professionals and researchers joined forces today to present the National Cancer & Life Action Plan. Their message? Living with and after cancer is about more than survival. These experts, including researchers from the University of Twente, have come together to form the Cancer Survivorship Care Task Force.

Cancer care has dramatically changed as a result of the measures taken during the COVID-19 pandemic: many patients have not been going to their GPs, or putting it off, and have been referred to the hospital later. Consequently, a quarter fewer cases of cancer have been diagnosed for several weeks, as found by the Netherlands Cancer Registry based on initial diagnoses in the PALGA pathology database. Dr. Avinash Dinmohamed of the Netherlands Comprehensive Cancer Organisation (IKNL in Dutch) and prof. Sabine Siesling of IKNL and the University of Twente and colleagues report this decline in diagnoses in the highly regarded scientific journal Lancet Oncology.

At the offices of IKNL in Eindhoven, the Personal Health Train community inaugurated their first official workspace. Professor André Dekker, one of the founders of the PHT concept, had the honour to cut the ribbon at this festive occasion. The workspace is a place for developers and innovators to meet and work together on the Personal Health Train.